About the associationSurrogacy: Childbirth in Pulmonary Hypertension
The Surrogacy Center at the Clinic of Prof. Feskova A.M. has been operating since 2006, offering a comprehensive range of services, including surrogate mother selection, assisted reproductive technology programs, pregnancy management, childbirth organization, and legal support.
6 July 2015On September 23, 2014, the Association of Patients with Pulmonary Hypertension was admitted as a member of the Public Council under the Ministry of…
On September 23, 2014, the Public Council under the Ministry of Health of Ukraine welcomed the Association of Patients with Pulmonary Hypertension in Ukraine, led by the Chairman of the Board, Oksana Alexandrova, as a new member.
30 October 2014Social projects
Colleagues from the Greek Association of Pulmonary Hypertension Patients have extended an invitation for us to participate in a flash mob on their Facebook page. The #selfoeforPH flash mob, centered around taking selfies, is gaining momentum, with Ukrainian patients showcasing photos featuring…
30 October 2014Signing a memorandum with patient organizations in Ukraine and a protest action near the Verkhovna Rada
On March 25, 2014, we participated in the signing of a memorandum initiating a bill in the Verkhovna Rada of Ukraine. The bill aimed to raise excise taxes on alcohol and tobacco, directing 100% of the funds towards purchasing medicines for patients in Ukraine.
27 August 2014The Verkhovna Rada adopted the Law on Orphan Diseases
On April 15, 2014, the Verkhovna Rada of Ukraine passed the Law of Ukraine “On Amendments to the Fundamentals of Ukrainian Legislation on Health Care to Ensure the Prevention and Treatment of Rare (Orphan) Diseases” with 260 votes (registration No. 2461). The initiative was led by the parliamentary…
16 April 2014Application for VENTAVIS for the year 2014 (patient-doctor)
Dear participants of the Ukrainian Association of Pulmonary Hypertension! In the near future, please do not forget to contact your local therapists and cardiologists, your treating (disease) doctors at your place of residence (registration), in order to complete and submit an application to receive…
21 February 2014Response from the Ministry of Health of Ukraine to the letter from the Association of Pulmonary Hypertension Patients
In mid-June 2013, the Association addressed the Minister of Health of Ukraine, R.V. Bogatyreva, and the Chairman of the Verkhovna Rada Committee on Health Issues, T.D. Bakhteeva, with the following letters
18 July 2013The new drug Riociguat promises to make the treatment of pulmonary hypertension more effective
The pharmaceutical company Bayer is gearing up to launch a highly effective drug for the treatment of pulmonary arterial hypertension into the market by mid-14, with plans for free sale. Clinical trials for the new drug, Riociguat, have commenced in humans and are showing promising results.
13 December 2012